Index of Primary Co-Cure Pages
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[Note: Non-Profit, Medical, and Educational Sites, Commercially Funded Sites, On-line Publications, and Other Sites appear on page two.]
Links to Other Web Sites and Resources Page Number: 1 2
About.Com Chronic Fatigue Syndrome & Fibromyalgia. Guides, who are the heart and soul of this effort, mine the Web for the most relevant and timely information, sorting through other Internet Web sites, discussion groups, and chat areas to find the most valuable links
and lively conversations.
Action Without Borders (formerly called The Contact Center Network)
AllRefer Health Encyclopedia - Medical resource provides extensive information
on diseases,
symptoms,
tests,
surgeries,
injuries,
nutrition,
poisons, and
special topics.
Focuses on family and community health, and provides an extensive collection of
medical pictures and images.
Alphabetical List of Specific Diseases/Disorders, MIC-KIBIC at the Karolinska Institute. This is an amazing directory. (Note: CFS listed as Fatigue Syndrome, Chronic.)
Ask Noah About: Chronic Fatigue Syndrome.
CFIDS CFS FMS M.E. GWS Directory.
CFS DAYS Home Page; CFS/FMS References. Be it information on Chronic Fatigue Syndrome (CFS), Fibromyalgia (FMS) or the healing tonic of a good laugh at them, you've come to the right place . . .
Chronic Pain, Chronic Fatigue Syndrome,
Fibromyalgia, and other Medical Resources..
Directory of Scholarly and Professional E-Conferences; The 11th Rev.. eMedical. Get the health facts you need online from this Melbourne based medical Internet company, founded, owned, and run by Australian registered Medical Practitioners.
Empowerment Zone -- helping individuals and communities achieve self actualization and full citizenship. A comprehensive site encompassing the rights and freedoms of the disabled.
Family Village. A global community that integrates information, resources, and communication opportunities on the Internet for persons with mental retardation and other disabilities, their families, and those that provide them services and supports.
Free-Nets & Community Networks.
HANDITEL The aim of the server HANDITEL is to gather the information existing on the World Wide Web related to the field of disabled and elderly people is maintained by ADAPTH a.s.b.l. and is part of SocialNet Luxembourg.
Healthfinder, the new federal government site for healthcare information, was launched on April 15th and has links to all types of health, support, and resource information.
Healthopedia.com - Medical consumer
information resource contains comprehensive and reliable content in patient-friendly language on
over 1,500 health topics,
70 focussed health centers,
450 medical illustrations, more than
11,000 drugs and medications, and daily
health news.
internet-health-directory.com - Health Information and more.
My WebMD WebMD is a web site dedicated to providing consumers with up-to-date health information.
Talarian Index. Comprehensive resource on all aspects of pain.
E-Mail Lists, Newsgroups, and Other Resources
E-Mail Lists and Newsgroups
Online Bulletin Boards and Chat Rooms
Search Tools are available on every Additional Resources page.
This page is provided as a resource listing of primary internet sites for CFS, FM, MCS, GWS, and auto-immune conditions. If you would like to see an online resource listed here, please contact us by completing our on-line form or sending an email message to Co-Cure-Mod@listserv.nodak.edu.
Comprehensive Directories
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Carla's Place. Cerebral palsy education plus fibromyalgia information with herbal remedy recommendations.
CFS DAYS Home Page; CFS/FMS References. Be it information on Chronic Fatigue Syndrome (CFS), Fibromyalgia (FMS) or the healing tonic of a good laugh at them, you've come to the right place . . .
Coping with Fibromyalgia: A Six-Part Series, by Deborah A. Barrett, Ph.D.
Fibro-Friends. This is a Web site/support group located in the United States, with information on fibromyalgia, myofascial pain syndrome,and chronic fatigue. There is also a forum, many different articles, a newsletter on-line, links to other sites and much more.
Fibromyalgia-i.com - Information on fibromyalgia including information on what is fibromyalgia, fibromyalgia symptoms, understanding fibromyalgia, hgh and fibromyalgia, fibromyalgia diagnosis, fibromyalgia treatment, fibromyalgia diet, fibromyalgia research, fibromyalgia trigger points, and fibromyalgia support groups.
Fibromyalgia: A New Perspective. A personal look at a connection between Fibromyalgia and Attention Deficit Disorder. Attention Deficit Disorder medications may relieve pain and improve other endocrine functions in many Fibromyalgia patients.
A Fibromyalgia, Chronic Fatigue & Central Sensitivity Syndrome Online Resource.
Fibromyalgia Syndrome, Chronic Fatigue Syndrome & Central Sensitivity Syndrome are complex syndromes that undoubtedly affect the
overall wellbeing of those who suffer from them. This comprehensive resource website helps to explain the details of these syndromes
and ways you can help yourself that have helped others. Sometimes the only individual who can heal us is ourselves.
Fibromyalgia & Chronic Myofascial Pain Syndrome (FMS & MPS). “This site describes two related diseases, Fibromyalgia, and, Chronic Myofascial Pain Syndrome. These conditions are clearly clinical disorders, and as they share symptoms with so many other disorders, currently among the most mis-diagnosed of ailments.“
Fibromyalgia Financial Information & Useful Links Links to information about financial help, disability filing help, doctor/patient/family/friend communications, self-help and more.
Fibromyalgia.Researcheasy.com. Resource site for everything to do with fibromyalgia. Full of newsletters, articles, links and other resources - all free - in one easy to navigate site to save time and money.
Fibromyalgia Support Center.Everything you need to know to live the life you want to live. A resource for those wanting to learn about fibromyalgia or learn how to fight the disease. Contains over eighty articles on fibromyalgia and chronic fatigue syndrome.
Fibromyalgia Treatment Reviews. Read posted reviews of various fibromyalgia treatments and therapies or leave your own.
Gossamer's CFIDS/FMS Site.
An eclectic set of CFIDS/FMS resources, humour, stories and information.
Guai-Support Network. The Guai-Support Network provides a range of services including information, resources and access to a mutual support environment, for people following (or considering doing so) a Guaifenesin protocol for the treatment of fibromyalgia. Since it is a topics list, 'Guai'ers' can discuss anything to do with FMS under an appropriate topic. There is a link for joining the support mailing list forum at the top, right hand corner of the home page under the heading 'Member Resources'.
Moira's Canberra Fibromyalgia and Chronic Fatigue Syndrome page is an Australian site for people with fibromyalgia syndrome (FM, or FMS) and/or chronic fatigue syndrome (CFS, CFIDS or ME). A well rounded site with international appeal.
Zoe's Fibromyalgia Awareness Website
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Environmental Illness Resource.
Offers latest news, articles, links directory forums and more to sufferers of modern chronic illnesses including CFS, multiple chemical sensitivity, fibromyalgia and gulf war syndrome.Health & Environment Resource Center.
H&ERC's primary mission is to inform the public on the relationship between environment and health through articles, newsgroups, publications, and one-on-one correspondence.
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Extensive selection of GWS links. From the Netscape Open Directory Project.
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Abstracts from the CRISP Database Pertaining to CFS and Related Illnesses
Cartoons About Life with Chronic Fatigue Syndrome and MCS. Features cartoons and humor writing by Sharon Wachsler about living with CFS and MCS.
CEFCA Chronic Fatigue & Immune Dysfunction Syndrome, Environmental Illness, Fibromyalgia, Candida,and Allergies (Food and Multiple Chemical Sensitivities).
CFIDS Information a collection of internet links by Cindy Peterson.
The CFIDS Report Cutting Edge News and Commentary for the CFIDS community!
CFIDS/M.E. Information This Web site is provided by Mary Schweitzer, Ph.D.
CFS Caregivers. This site provides information and insight into the unique challenges that face spouses and partners of CFS patients, as well as others who provide care for CFS patients.
CFS Corner. A web site designed for information and research into Chronic Fatigue Syndrome.
CFS/CFIDS/ME/... Reference Guide© v1.22.
CFS DAYS Home Page; CFS/FMS References. Be it information on Chronic Fatigue Syndrome (CFS), Fibromyalgia (FMS) or the healing tonic of a good laugh at them, you've come to the right place . . .
CFS/FM/MCS/Lyme Disease Information Pages by Marilyn J. Kerr, RN.
CFS / M.E. Information from CFS-NEWS
CFS Radio Show transcripts Dr. Mazlan interviews doctors and researchers about CFS (and related disorders) research and treatment. This site also has links to audio tapes of recent shows.
CFS Ring. The CFS ring is made up of homepages of ME/CFS Sufferers, Caregivers, Friends, Family, and ME/CFS Resources on the internet.
Chronic Fatigue Syndrome. Issues pertaining to the diagnosis, treatment, and pathology of CFS by David A. Hall, M.D.
CPAR Web Site. CFIDS Protocols and Research.
Doug's CFS Site. An entertaining and humorous CFS site.
Fighting Fatigue.org - Resource site for Chronic Fatigue Syndrome, Fibromyalgia, and IC Disease.
Fighting M.E. A young woman's story of living with ME/CFS as a child, teen-ager and now as a young adult.
Fog Clutter is an online 'zine dedicated to the writings of CFS sufferers.
Foggy Friends is an on-line support group based in the UK that has over 230 members from all over the world and from all age groups. The aim of this site is to provide a fun safe place for people to seek help, support and advice, free from harassment. A place to share smiles, tears, views and treatments that have helped them live with this illness.
Gossamer's CFIDS/FMS Site.
An eclectic set of CFIDS/FMS resources, humour, stories and information.I Can Finally Feel My Toes: A Survivor's Story (Paperback) by Elaine Almon Kotler.
Book Description: Gifted and talented, Eve knows exactly what she wants from life. But she marries an abusive man and endures his stalking, his intimidation, and an unsympathetic court system. When she learns she has an "undiagnosable illness" she heads straight into darkness. On the brink of losing her career, her home, her child and perhaps even her sanity, Eve decides to take matters into her own hands. This inspirational story is one of hope and empowerment for women who need to find the strength they have within.Information Pages on Mycoplasma/Chlamydia/Rickettsia and CFS
"Listening to CFIDS". Web site with essays, poems, short stories, etc. of PWCs which tell what CFIDS is all about in their lives. The point of the site is both to provide support to PWCs ("I'm not alone in what I feel.") and to educate healthy people about what the illness is really all about.
Lois Randall's Chronic Pain, CFS, FMS and other Medical Resources Website
M.E. BBS Information Mailing Service. A voluntary project, run from Stenhousemuir in Central Scotland, which enables M.E. sufferers or their carers to have access to valuable news and information about M.E. from electronic networks such as the Internet and Fidonet. Many people don't have access themselves, so the Mailing Service does it for them.
M.E.B.C. M.E. & FM Manual Newsletter -(1996) 156 pages.
ME Chat homepage This is the homepage of the ME discussion and chat group for patients and caregivers in and from the U.K.. It includes many links to other resources.
M.E. India This is the first Web site in India for people with M.E./CFS. This site contains information and a forum.
Melissa Kaplan's Home Page for CFS/CFIDS information.
ME Support ME Support is based in the West Midlands in the UK; the group's been going since 1996 and has been online since March 1998.
Moira's Canberra Fibromyalgia and Chronic Fatigue Syndrome page is an Australian site for people with fibromyalgia syndrome (FM, or FMS) and/or chronic fatigue syndrome (CFS, CFIDS or ME). A well rounded site with international appeal.
Myalgic Encephalomyelitis Support Services of Canada (M.E.S.S.)
Myalgic Encephalomyelitis - What is it? M.E. Organisations.
Northern Virginia CFS Support Group.
A Place for ME - "A Place for ME" is a registered UK charity (no 1120028) that aims to provide adapted housing and ME-trained carers to people with ME. We want to provide people with options, a solution in a crisis, and security for the future.
Recovery from CFS: Bruce Campbell, the creator of the CFIDS/FM Self-Help Program, describes how he used self-help to recover from CFS.
Research on Chronic Fatigue Syndrome, Mycoplasma, Chlamydia and Rickettsia Infections.
RiME - Campaigning for Research into Myalgic Encephalomyelitis.
Ted Shaw's Home Page includes scientific references and abstracts to articles on CFS.
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Government and Central Authorities
ATSDR Agency for Toxic Substances and Disease Registry, Public Health Assessments. ATSDR, is an agency of the U.S. Public Health Service. It was established by Congress in 1980 under the Comprehensive Environmental Response, Compensation, and Liability Act, also known as the Superfund law. This law set up a fund to identify and clean up our country's hazardous waste sites. The Environmental Protection Agency, EPA, and the individual states regulate the investigation and clean up of the sites.
American College of Physicians (ACP).
AHA Central Office. This site is an integral extension of the AHA's Central Office on ICD-9-CM.
AHAData.com provides comprehensive healthcare data online.
American Psychiatric Association.
American Psychological Association.
Canadian Institute for Health Information.
Canadian Medical Association Online (CMA).
CDC Home Page Center for Disease Control and the CDC WONDER, which provides a single point of access to a variety of CDC reports, guidelines, and even numeric public health data.
Central Office on ICD-9-CM The International Classification of Diseases, Ninth Revision, Clinical Modification, ICD-9-CM, is a classification system that groups related disease entities and procedures for the reporting of statistical information. The clinical modification of the ICD-9 was developed by the National Center for Health Statistics for use in the United States.
CFSCC (DHHS CFS Coordinating Committee) Web site.
ClinicalTrials.gov Linking patients to medical research.
CRISP Database. CRISP (Computer Retrieval of Information on Scientific Projects) is a searchable database of federally funded biomedical research projects conducted at universities, hospitals, and other research institutions.
Dept. of Labor (U.S.) line to the ERISA Act Employee Retirement Income Security Act (ERISA), (29 USC §1001 et seq., 29 CFR 2509 et seq.). ERISA is the keystone of U.S. federal legislation concerning employer-provided health and welfare plans (pensions, health and disability insurance, etc.), and is administered jointly by the U.S. Dept. of Labor and the U.S. Internal Revenue Service.
FedStats More than 70 agencies in the United States Federal Government produce statistics of interest to the public. The Federal Interagency Council on Statistical Policy maintains this site to provide easy access to the full range of statistics and information produced by these agencies for public use.
Federal Register; 1995, 1996, 1997 and 1998.
Food and Drug Administration, with pages on Nonprescription Medicines: What's Right for You?
Health Canada Laboratory Centre for Disease Control
MedSpecNet Canadian medical affiliates.
MigDB - The Mitochondria Interest Group.
National Center for Health Statistics (NCHS) (USA) and the International Classification of Diseases, 9th Revision, Clinical Modification (ICD-9-CM)
NIAID (USA). National Institute of Allergy and Infectious Diseases Home Page, has produced several fact sheets and brochures on CFS.
NIDCD National Institute on Deafness and Other Communication Disorders Webpage (part of NIH, USA).
NIH National Institutes of Health (USA)
NIH Special Interests Groups - Epidemiology & Clinical Trials Interest Group (USA).
NIH Clinical Research Studies: Search and Browse Page (USA). Search the collection of research studies being conducted at the NIH Clinical Center by: entering the diagnosis, sign, symptom, or other key words or phrases; or browse by institute of primary investigator or primary disease category.
RCPSC Royal College of Physicians and Surgeons of Canada.
Social Security Online (USA) has a factsheet on Providing Medical Evidence to the Social Security Administration for Individuals with Chronic Fatigue Syndrome; a Guide for Health Professionals.
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Association of Youth with METhe CFIDS Association of America's Young Persons With CFIDS (YPWCs) Website
For Parents of Sick and Worn-Out Children
Information on Pediatric CFS from the CFS-NEWS Web site (Also includes information on Discussion Groups and Associations concerned with Pediatric CFS and parents of youth with CFS.)
The Pediatric Network for Chronic Fatigue Syndrome, Fibromyalgia, and Orthostatic Intolerance
Sleepy Teenzzz This is a CFS site designed by teens with CFS for teens with CFS. Offers opportunities for support.
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Continue to Other Web Sites and Resources Page Number 2
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